Coming round after a Lost Weekend…

It’s been a long time since I posted, but I’m sure you understand why! Last weekend was my “Lost Weekend” after the second session of chemo.

For my own benefit really, but for anyone who might be interested, I want to record how I felt, and what I did/ ate in that weekend.

THURSDAY: Chemo session. Got home at about 18.00, had a cup of tea. Went to bed. Slept.

FRIDAY: Nurse came for injection to boost white blood cell production. Day spent sleeping/ listening to podcasts in small chunks. Drank about 1.5l of cranberry juice/water through the day. Breakfast: slice of marmite toast, half a cup of coffee. Lunch: slice of marmite toast. Got up round 18.00. Dinner: half a tiny baked potato and cheese. Felt sick. Went to bed about 19.30. Slept. Moulting started in earnest overnight.

SATURDAY: Day spent sleeping/ listening to podcasts in slightly larger chunks/ some activity on FB. Drank about 1.5l of cranberry juice/water through the day. Breakfast: 2 slices of marmite toast. Lunch:2 slices of cheese on toast + tomato soup. Got up round 17.00. Dinner: small amount of pasta, sauce & cheese. Felt less sick. Went to bed about 20.30. Slept. Moulted.

SUNDAY: I meant to get up earlier, but couldn’t be arsed.  Morning spent sleeping/ listening to music, or podcasts/using FB.  I got up around 16.00, finally having a shower (Mr FD was probably quite relieved about that!) but not getting dressed. Wrapped myself up in PJs, fluffy dressing gown and thick socks.Generally still very dopey, so snoozed, half watched some TV. Went to bed about 20.30, slept reasonably well. Moulted.

Breakfast: 2 slices of marmite toast. Lunch:2 slices of cheese on toast + mushroom soup. Dinner: A small amount of gnocchi and pasta sauce, yoghurt with jam

MONDAY: Got up around lunch time, morning spent sleeping/ listening to music, or podcasts/using FB. Got dressed. Afternoon spent on sofa, snoozing, watching daytime TV. Went to bed about 21.30. Didn’t sleep well. Drank reasonably well – about 1.25l

Breakfast: 2 slices of marmite toast. Lunch:2 slices of cheese on toast + mushroom soup. Cereal bar and pineapple in a pot. Dinner: A medium amount of a sort of “sausagiflette” – like tartiflette but made with sausages.So basically, potato, mushroom, onion, sausage, spinach and raclette cheese. Yoghurt and jam.

TUESDAY: Because I’d slept badly the night before due to a sinus headache, Mr FD was a bit worried. When the Nurse came to take blood for my weekly blood test he asked her advice, and they decided I should go to the doctor. An appointment was made. Marie-Laure (Nurse) had the usual difficulty taking blood – it is very lethargic, my blood, and it’s really hard to find a vein. She tried two places and finally squeezed out just-about-sufficient for the blood test. Went to doctor in afternoon, sinus infection diagnosed, and – due to low blood cell count – everything was thrown at it: anti nausea tablets, anti biotics (dissolvable ones. BLEUCH. Plus, as they are strong, likely to cause nausea, and diarrhoea. Yay!), yeast (dissolvable in water. BLEUCH! to restore gut bacteria destroyed by the antibiotics)

It was a difficult day – lots of crying. Fed up with moulting, and my pillows are covered in hair. I wake up with moutfuls of hair. It’s NOT FAIR! Mr FD got the worst of it from me. God got complained to. Felt dopey for most of the day, but perked up after dinner.

So do Fat Dormice!

Breakfast: 2 slices of marmite toast. Lunch:2 slices of cheese on toast + marmite.  Dinner: Smallish portion of chicken, pasta, sauce; cereal bar, pineapple in a pot. Took yucky antibiotics. Went to bed about 20.30. Didn’t get to sleep until about midnight; woke regularly and for long periods of time. Usually with mouthfuls of hair, despite wearing a hair-covering.

WEDNESDAY: Took horrible medication with large glass of cranberry juice/water; took anti biotics dissolved in water (BLEUCH!) quickly followed by a large bite of marmite toast!  Morning spent doing some paperwork on computer & reading blogs. Mr FD shaved my head, as I am fed up of moulting like a cat!

Breakfast:2 slices of marmite toast & a banana. Took yeast + a chocolate Dime sweet crunched up immediately! Lunch:Antibiotics. followed by handful of strong flavoured snacks, 2 slices of cheese on toast, cereal bar. Afternoon: walk to post office & around the block (about 500 m) followed by 20 minute snooze and some afternoon TV.  Dinner: Antibiotics followed bgy strong flavoured crisps, medium sized bowl of chilli + garlic bread, apple compote, chocolate biscuit.  Yeast taken with Dime sweet. Bed at 22.30. Slept through (almost!) until 7.45.

The walk, albeit only 500 m or so, took me about 20 minutes, and required two sit-downs on the way. The sit downs were partially to enjoy the sunshine and breathe some fresh air, but it was hard work!

I think my eating is back to normal, albeit smaller portions, but I still have the horrid anti biotics/ yeast combo to take for another 6 days – it makes my stomach fizz, and feel bloaty, but (so far) I’ve not had the expected diarrhoea. The other interesting thing is how my tastes have changed: while I still enjoy sweetish things, I am certainly not eating so many. During the first few days, I didn’t want any strong flavours, except for Marmite (as one can see from the amount of marmite toast I’m eating!), and the smell of cooking was horrid! And coffee, which is my go-to hot drink, has a rather unpleasant metallic taste – I can have the breakfast coffee, but after that it is not at all appealing. I’m not really enjoying any hot drink – tisanes taste too weak, or just not-nice. I’m not a tea drinker, but I’m thinking I might try a cuppa, just to see if I enjoy it. I do need to try to drink a bit more, as the Nurse said I need to aim to drink at least 1.5l a day, and I don’t think I’m doing that.

 

I’m not looking for sympathy here (though it’s always nice to have some!) but I thought you might be interested to read what a “Lost Weekend” is like – although this one has come with the added joy of the sinus infection! It’s also useful to have a record somewhere.

I have 1 more session of FEC 100, which is this current cocktail of poison, and then I go onto another regime, which will have different side effects: judging by the amount of anti-nausea medication that is prescribed, they are expecting more sickness. Plus this will affect my nail beds, so I have to put on a special kind of nail varnish, and rub an ointment around my nails twice a day. Stupidly, I’m already looking ahead and dreading that: sufficient unto the day…and so on!

We have booked to go on the Cycle Club short break, down in the south of France, which is the weekend after my next session. I will be tired still, but eating OK. I’m planning on spending the 5 days relaxing in the sun (while being fully covered, as I should avoid sunlight apparently) either in the holiday village, or on the nearby beach. Some reading, zentangling, and other relaxing activities will take place.

I’ll try and post tomorrow – I have a book review and three, yes, THREE, blog appreciation awards to acknowledge!!! Sorry it’s taken so long.

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13 thoughts on “Coming round after a Lost Weekend…

  1. Happy to hear from you! What a grisly time you’ve been having of it. Poor you. I was thinking, since you’re enjoying marmite now about drinking Bovril/beef broth, oxo drinks? You might enjoy them more and because they’re more “foody” tasting they help with appetite too – at least they did me after an extended period of sickness. Hope it gets easier!

  2. I had been wondering if you were ok! It sounds like a tough time which you have every right to be emotional through! I hope you saw my last post about 40 acts of kindness, T was so happy to receive your drawing 😊 a trip relaxing in the sun sounds lovely. Sending lots of positive thoughts.

  3. I think documenting is good for you AND others. I have often thought it unfair that messy little details aren’t shared about a LOT of things, leaving those of us who may go through those circumstances ourselves surprised/dismayed by things and wondering if they are typical.

  4. Sending you lots of good wishes. It is a horrid thing you are going through and you have lots of sympathy from me. The side effects are hateful the only good thing to remember is that it will be over and a distant memory soon. A few days lying in the warm will do you good. Take care and best wishes. Good wishes to Mr FD too. Carole xx

  5. I think it’s great that you are documenting this journey. This will be good to look back on to see how far you have come and will help others too. Thanks for sharing and my best wishes to you and Mr FD

  6. Holding you in the light. x
    I used to drink only coffee but went off it when I was pregnant , so began to drink tea. Now tea is my go to hot drink. Lots of lovely different teas around now, so do experiment !

  7. Tastes can and do change in these circumstances, so anyting you can find and enjoy which doesn’t hurt is a good idea. Glad you’re still able to tolerate Marmite. My best wishes for your continued recovery.

  8. Sorry to hear you have been so unwell. I am sending you all hugs and best wishes.
    Can you eat crisps by the way? I just wondered?! I can imagine the hair thing is difficult. I am very attached to my hair so I could imagine finding that hard.
    xx

  9. This post brought tears to my eyes. Thank you for your honest reflections and documentation. I have several friends who have been going through something similar. It all helps me to understand. Well done for getting to the other side of your lost weekend. I do hope this weekend just gone has been easier.

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